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I'm new. - Breastfeeding with Low Breastmilk Supply

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Previous Entry I'm new. Nov. 5th, 2004 @ 10:00 am Next Entry
My name is Destiny and I have a 2 1/2 month old named Caitlyn.

About two weeks ago I noticed that my milk supply was dwindling down. At first my doctor put me on Reglan but my body couldn't tolerate it and I could barely hold my head up. So that was out of the question since I have to care for my baby girl during the day. Then I tried Fenugreek which worked really well, but caused terrible gas in my baby. I just ordered the Domperidone and received it yesterday. I am trying to find out some more info on it. The website said to take it 3-4 times a day, but that is it. Can anyone tell me what kind of side effects there are for me and the baby, also how long I should take it for, and if I would need to taper off?

Any help would be appreciated. I had a girl on my friend's list who was taking it, but her internet was disconnected so I can't ask her.
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From:joy_disaster
Date:November 5th, 2004 07:22 am (UTC)
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I took 2 pills every 6 to 8 hours. I didn't have side effects, except slightly more frequent poops. I had the most horrible side effects on Reglan and I can tell you Domperidone is nothing like Reglan in that respect. From this page:

"Generally, we start domperidone at 20 milligrammes (two 10 mg tablets) four times a day. If taking domperidone 4 times a day is inconvenient, 30 milligrammes (three 10 mg tablets) three times a day is fine. Printouts from the pharmacy often suggest taking domperidone 30 minutes before eating, but that is because of its use for digestive intolerance. You can take the domperidone about every 6 hours, when it is convenient (there is no need to wake up to keep to a 6 hour schedule-it does not make any difference). Most mothers take the domperidone for 3 to 8 weeks. Mothers who are nursing adopted babies may have to take the drug much longer.

After starting domperidone, it may take three or four days before you notice any effect, though sometimes mothers notice an effect within 24 hours. It appears to take two to three weeks to get a maximum effect, but some mothers have noted effects only after 4 or more weeks. It is reasonable to give domperidone a trial of at least 4 weeks before saying it doesn't work."

I was like a firehose after a couple of days of Domperidone, and began tapering (very slowly!) almost right away. It took about 2 months for me to taper off but the milk stayed.
From:caitlynsdestiny
Date:November 5th, 2004 07:32 am (UTC)
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How long did you stay on it for? I did read where it doesn't have the side effects like Reglan, but from the same website I read this:

The agency is concerned with the potential public health risks associated with domperidone. There have been several published reports and case studies of cardiac arrhythmias, cardiac arrest, and sudden death in patients receiving an intravenous form of domperidone that has been withdrawn from marketing in a number of countries. In several countries where the oral form of domperidone continues to be marketed, labels for the product contain specific warnings against use of domperidone by breastfeeding women and note that the drug is excreted in breast milk that could expose a breastfeeding infant to unknown risks. Because of the possibility of serious adverse effects, FDA recommends that breastfeeding women not use domperidone to increase milk production.

I also read this on breastfeedingonline.com:
Neurological side effects are mentioned in the approved label for the product and since the blood-brain barrier is not fully developed in an infant during the first few months of life, the risks of neurological side effects of this drug in younger children is higher than in an adult’s. One approved label for the product notes that extrapyramidal symptoms, disturbance of consciousness and convulsions can occur in children taking domperidone and it recommends that this drug be administered with extreme caution in infants under one year of age and notes that duration of administration should not exceed 7 consecutive days of use in children less than 3 years of age.

That is why I wanted to get some other people's opinions and experiences.
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From:joy_disaster
Date:November 5th, 2004 07:54 am (UTC)
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I believe that the Domperidone "warning" was political, not health related. The "studies" showing cardiac issues are done of animal heart tissue that is bathed in a domperidone solution - not anything near the normal, small dose a person takes. The 2 humans believed to be harmed by this drug were taking it in IV form, and it was several decades ago. I believe the issue is an economic one with pressure from the baby milk manufacturers and from drug manufacturers hoping to market their own brands here without competition. These guys talk about it. I would certainly take the drug again, with no worries. Even if there were a risk, and again I do not believe there is, it would still be worth it to me.

I started at the top dose, which I maintained for about 10 days. Thereafter I dropped one pill every 5 to 7 days until I was just taking 2 a day, at which point I stopped. It took about 2 months from start to finish. If you go gradually enough the milk supply ill not diminish. It is important to nurse the baby or pump a lot during this time.
From:caitlynsdestiny
Date:November 5th, 2004 07:59 am (UTC)
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Thank you so much. You definitely made me feel more comfortable about it.

Do you know if when my baby starts nursing more my milk will build up on it's own again or will I have to take something to build it up more? I hope that makes sense.
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From:joy_disaster
Date:November 5th, 2004 08:00 am (UTC)
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Do you mean in addition to the domperidone?
From:caitlynsdestiny
Date:November 5th, 2004 08:05 am (UTC)
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I mean if I do it just like you did and say my supply is better, when my daughter starts eating more later on after I have finished it; will my body produce more to satisfy her on its own or will I need to start the domperidone all over again.

Sorry if I am being a pain.
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From:joy_disaster
Date:November 5th, 2004 08:25 am (UTC)
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My experience was that my milk supply "normalized" and I never needed it again (my daughter is 2-1/2 and still nurses at night). I always kept some around though! Just in case. It was also handy to have when another mom needed help.
From:caitlynsdestiny
Date:November 5th, 2004 08:32 am (UTC)
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Thank you again. You have been so helpful.
From:(Anonymous)
Date:May 4th, 2008 08:46 am (UTC)

Domperidone

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I have been on domperidone for four days and cannot get past 15 to 20mg per day as it causes me to contract too much in my stomach but in saying that I have had the most sensative nipples ever and swollen breasts so doses vary depending on what you can tolerate. Just start of at small doses like 5mg thee times per day then after a couple of days increase it to 10mg 3 times per day and see how you go from there. I forgot to mention that there is a protocol out there which states you usually need to be taking the birth control pill as the active part of the protocol and take domperidone as well for about 30 days then drop the pill and continue with domperidone and begin pumping every three hours.

Sara.
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